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Identifying Explaining Managing Supporting Consultation Video
• What is NF1?
• How do I know if I have it?
• How is it diagnosed?
• What causes NF1?
• What can I expect?
• What are we learning about it?
• What are my medical options?
• Are other resources and tools available?
• How do I care for and support my child?
• How do I talk about NF1?
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Consultation Video

segments 1 - 6 | 7 - 11

Abby and Paul are the parents of Hannah, a three-year-old with NF1. They consulted with Dr. Bruce R. Korf, a clinical geneticist and Medical Director of the Harvard Medical School-Partners HealthCare System Center for Genetics and Genomics. This consultation occured at Boston's Children's Hospital in July 2002, after Dr. Korf examined Hannah.

To see other video elements of this site, visit the expert interview and personal stories (Andres, Megan, Miguel and Syrel).

You will need QuickTime 5 to view the video segments.

Segment 1: [2:48]  
Doctor Korf and Hannah's parents talk about NF1 and its occurence.

Segment 2: [2:30]  
Dr. Korf talks about Hannah's café-au-lait spots, an early sign of the disorder.

Segment 3: [7:05]  
Dr. Korf confirms and explains Hannah's diagnosis.

Segment 4: [1:46]  
Hannah's parents ask about the likelihood of Hannah developing more neurofibromas.

Segment 5: [4:50]  
Dr. Korf determines that Hannah is the first in her family to have the disorder.

Segment 6: [3:39]  
Hannah's parents ask about her life expectancy.

segments 1 - 6 | 7 - 11

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